Doctors Appointments: More hassle then necessary

Today at 12:15pm I had a Dr. appointment with my MD. I had an appointment last Tuesday but I forgot about it and missed it. The point of this appointment when it was made was to have my ptinr check and for my 3 month check up and to go over the results for my ultrasound 2 months ago. I got there about 10 min after 12:00 and signed in and started listening to the audio-book The Twelfth Imam which I have on my iphone from audible.com. While in the Dr I also talked to him about getting something from my cold or what ever it is I have and to order a scan on my neck that has been giving me a ton of problems. I got an anti- inflammatory script for that and an anti- biotic for my cold.

All that went fine after I got them moving on it. The problem being it took an hour and 45 min. just to see the Dr for 10 min. Then I had to work to keep my Dr on track on every thing I needed to talk to him about before he left the room. Theres no way I should have to do that. I pay him not the other way around. Do the job your paid to do. The guy makes a fortune because he not only has his medical stuff but he also owns the building and 3 or 4 other doctors rent off of him to use the office. some times I want to hit people on the head with a golf club. Sorry for ranting just really irritated today.

So Sick!

Starting tuseday or wednesday I started getting a cold and now its friday night and Im worse. On top of that my whole body hurts and I'm exhausted. I plan on calling in sick tomarow and take a 4 day weekend to get some rest but Im hoping I can shake this. I dont want to go to the Doctor for it but if all else fails I have an appointment anyways on wednesday for other things so I will ask my dr then. Sorry I haven't been posting on this blog lately ive been very distracted with other projects. I hope to be more active soon.

Spoon bending should be left to the gifted

This coming week of thanksgiving the schedule's at work are all over the place. the week before I work Wednesday 9-7:30 then off Thursday then work Friday and Saturday then off Sunday and work Monday 3:30- 2:00. then I'm off Tuesday maybe and work Wednesday - Saturday 9:00- 7:30. I say maybe for Tuesday because theres only 2 people scheduled for that day because its our day we are shut down an he didn't bother showing up to work recently so I don't know if he still works for us or not.

By doing this I know i will be seriously pushing my limits and I hope I dont brake all my "spoons". I know I will feel it when every thing is over.

irritation

I find that I get really ticked off when people ask why i don't do things and I tell them because ive been to tired and they just push it off as me being lazy. Im not lazy in any way . I work a full time job I do allot of reading/studying and it really takes allot out of me. Just because you dont fully understand something doesn't make it untrue or an excuse. Some times I really hate people that are closed minded.

i think that just because im young people assume that I will do what ever I can to get out of work and thats just a bunch of crap. i work very hard at every thing I do and will not settle for mediocrity. I work on new ways to be more efficient all the time . ok im running out of steam because im getting very tired.

Your opinion doesn't matter

I know this doesn't have a lot to do with chronic illness in any way but because of voting today I felt it was appropriate. my pastor said something Sunday and I completely agree with him about people that complain about the government and how things are run but refused to go out and vote or at least votes absentee. I completely understand that there are some situations we can get out to vote at the polling stations that are designated for your area but you can always get an absentee ballot and vote up to three months before the ballots are actually ready be cast.

I understand that many people can't get out of their houses allot of days due to illness that's no excuse not to vote. Just because we are sick does not mean we don't have an opinion on how things should be run. If you choose to neglect this opportunity to make your voice heard and you should have no right to complain when things become bad for you. Many people driving completely insane because I make as to why they can't do it such as " I don't like politics" " I haven't been following the candidates" " I just don't want to". It's not just an opportunity but a responsibility to voice your opinion not only to benefit yourself but others in your family and friends.

If you disagree with me find them a dwelling that was nearside of it by good luck making good argument on that. Don't waste my time with crap you just make up.

ultrasound

tomorrow morning I have to be up at seven o'clock security for an ultrasound checking my arteries see if I have any new blockages due to the fact that I have lupus anticoagulant disorder. Starting about 19 min. I have to fast until after the test. I really don't like to fast because I just like the minds not go hungry just because I can. After that test about to come home get some breakfast take my medicine and go to work and hopefully make it for time to clock in. I talked to my manager about it and she said that I could come in a little later I needed to. I really don't want to be late by you my company that because I start at 11 o'clock then have to work till 930 that night. I'm been retired because of this and it's only the first day of my workweek.

I'm really hoping for an easy week but that never happens. But with any luck I should get started reading the next book on my reading list. Is it bad that I was thinking yesterday I be easier to be like the Collins in the twilight series so I never have to sleep.I would get so much more done sleeping really seems to waste a lot of my day. Plan on getting more rating done tonight I don't stay up too late the site have an early start tomorrow.

good things happen

Today I went to the eye doctor's so he could check to see if my lupus medication was poisoning my eyes. I have to have this done once a year so they can monitor the effects on my body. They were planning on doing a range test on my eyes by forgot and dilated them so there'd be no way for me to complete this test. After figuring out what had happened and finding out that I don't have vision insurance yet the Dr. said he would reschedule me for next month and do the test than and that he wouldn't charge me for it.why can't more people be nice like that and take into consideration the situation. Does any of my other doctors they would've still rescheduled that they would charge me for it to. It helped me a lot because it saved me about $30 which I could use all the help I can get as far as medical bills. My contact my medical insurance companies see if they would cover part of it since the exam is recommended by my rheumatologist.

Hope to post more

I hope to be old to post more articles that I have been doing. For several years I've been having issues with carpal tunnel. This makes it a lot easier now that I have dictation software. Some of you may also find this software useful on the day that you really don't feel like moving or can't move for that matter. It really makes things a lot easier when trying to express yourself. Myself included and many others find it difficult to put their thoughts into words on paper but can speak just fine. Earlier I wrote an 830 were article in just 20 min. and I find that to be pretty quick even though I type really fast naturally. Not trying to sell the software or anything I think it would really help with those of us that do blogs or any other type of writing. Thank you for taking time to read this. I will write more when I find inspiration for right now I'm tired is already my third post for today but only first on this particular blog.

Movie review: Love Simple

About a week ago I was contacted by producer John Casey. I was asked if I would be interested in doing a review for the movie Love Simple. I couldn't pass it up. I received my copy on Friday and watched it on the first day off that I had.

I absolutely loved the film. I felt that I could really relate to the characters having Lupus my self. I felt that it really hit on what its like to have these inviable illnesses and how people react when they find out. Seta(Patrizia Hernandez) and Adam( Francisco Solorzano)started there relationship based on lies. Not because they didn't think the other person would like the real them but because they didn't like the reality of there lives. The story unfolds with the help of the best friends Keith(Caitlin Fitzgerald) and Jesse(John Harlacher). Watch and see how all the lies completely collapses and they are forced to face the truth. Look this movie up on itunes at http://itunes.apple.com/WebObjects/MZStore.woa/wa/viewMovie?id=371635001&s=143441 or buy a copy as it goes international. Check out http://www.facebook.com/lovesimplemovie

Am I targeted for being sick

There's a law that says a company isn't aloud to fire you because of a disability. But that doesn't stop them from looking for a different reason or trying to make you quit .

When I started at the company I'm with they extended my probation because I wasn't moving as fast as the others. Reason being because I was born with under developed muscles in my hands and needed to build up to it. As I got better and me and my partner got more efficient they raised the bar so we have some extra for the next day to start with. Recently they split me and him up and put us both on our own and I'm now suppose to put the next day at-least 5 hours ahead.

That was all before

the lupus

became active and I got sick. In April of 2009 my leg started hurting me and began to swell up really bad but I worked on it for 2 days. On that Monday morning I went to urgent care to have it looked at. I was suppose to go in to work that afternoon. At urgent care they told me I had a blood clot in my leg and that I need to go to the hospital. I went to the ER and they emitted me and gave me 2 different blood thinners every day for a week. They took my ptinr that day and it was a 1.4 (very thick blood) but the swelling went down and they did X-rays of my lungs because my doctor thought I might have pneumonia as well. Turns out I had a couple blood clots in my lungs. So now I'm on blood thinners for the rest of my life. That makes me a bleeding risk at work.

They ran test on me for lupus and I tested positive now I'm thrown in to crazy schedules. I was denied a spot in the department that I wanted and now I'm bounced between my department and the department I wanted but I make the pay for my normal department the whole time every time one of them takes a vacation day. It puts me on swing shift and that's just not right.


-posted from my iPhone -

Resting

Well other then a couple runs here an there I've been resting as much as possible. I'm starting to feel better and the swelling in my wrist is going down but I'm still going to take it easy with that. I will have it wrapped for work Monday and Tuesday. I still not 100% and in can see a little swelling compared to my other that you can see the bone structure.


I've been posting from my iPhone because it is less stress on my joints although some may argue . It feels more natural to me. Still looking for better job opportunities with no luck. I found one that works on comition but I need to get a site up for that. It's slow because when I'm not working my crazy hours I've been sleeping . But I hope to find better luck in the near future. That is all! Good night

Addiction to over pushing

This week maybe last week I dont even know right now. Its just been crazy. I barely even remember any thing. swing shift. heavy days at work . then they tried scheduling me to work just 7 hours after getting off work and I finally said that theres no way. so after I go back for 2 more days I am talking an other day off to recover. Right now I'm very tired , my hands hurt and my carpel tunnel is acting up so I'm in a brace at the moment.

Im sorry I haven't written in a while on this blog I lost the password for a while and the server was down when I tried to reset it. I have been writing in my other blog on word press but thats just a general blog. Ive been doing allot of reading lately so I get caught up in that at times but its good to be back on here. Im going to go for now but I hope to be back to writing soon some times I just forget that I have limits. I'm very much a fighter and some times I just dont know when to take a break.

pushed to far

this week has been crazy so far. Bought new carpet for the house so we had to move all the furniture and beds and every thing to one part of the house. Some of that stuff is heavy and puts a strain on your body. So I was already tired but then I got called this morning by my job asking me to come in early so I did and it was a really busy day. So now I'm just laying here in bed trying to rest and intense my body. I'm done for the day. even if my Internet wasn't unhooked till we get organized I wouldn't be doing any research tonight. how you guys had an easier week.


-Matthew Sapp-

new position at Panera

Last week I talked to my manager about changing departments. so the next day I was trained for the job and on my own for the next 2 days. although very tired and in pain I got through it. I called today to find out what was going on with my job for this week because nothing had been said. I was told I got the spot and they are going to change that departments scheduling for me. as of this week I work Wednesday and Thursday 11:00am- 9:30 pm in my old department then I'm off friday so I can sleep then saturday and Sunday I work 5pm-3:30am then I'm off for 2 days! this will give me better pay and I'm not in the same department that I've been in for 3 years!! I'm really happy about that because my old job was to hard on my body. I still work for the same company but different area. All it took was going in and explaining to my manager that my current area wasn't healthy for me any longer and I wanted a that spot because it would be better for me and the company in the long run. I try not to advance just because I have lupus but it did help because it was ether I get put somewhere else or I would have to be quitting and I don't like to quit. although I work in the cooler that really isn't good for me eather it's the better of the two. so if any one else feels stuck remember "if you don't like it change it".

it's not permanent at this time but eventually will be. it's a start in the right direction and I'm moving forward.

-Matthew Sapp-

Know when to say no

Today was busy with having a meeting at Borders bookstore with my financial advisor then spending time with my future wife then we both went to the church to work the first day of Vacation Bible School. I'm very tired and sore right now. Along with many other people I have a problem with saying no. Its just not in my nature to say no to people when stuff needs done but I'm learning that as much as I don't want to I need to take things slower. I'm not really a workaholic or any thing because I work 4 10 hour days a week and thats enough for me but as soon as someone asked if I can do something its like I cant resist. I always want to get more done and cram more in to a day but its just becoming harder because I don't want to risk taking my self out for days at a time by over doing it. Some times having lupus makes me thing of Scruges partner in the Christmas story. He had to drag that chain around every where he went and some times it does feel like that. I don't know if any one else understands what I'm talking about but thats just what was on my mind tonight.

How productive is your passion?

Every one is passionate about something in there life. Some about sports such as football, basket ball, soccer , ect. Other people are in to books and movies or or many other things. There is nothing wrong with any of that. But is any of it productive. Some people can do well in there sports but theres very few of them and some that can read and become educated and make them selves better. Although what you do every second does not dramatically effect the course of your life; what you put the most in to can determine how things with play out for you. Having lupus has taught me not only to prioritize my life but that I need to push forward and do better because I cant make it doing physical labor. I want to do better for my self then that and keep pushing on. My passion is to succeed in doing something big. What is yours?

To much sun at the fair

On Tuesday I got called in to work for a few ours because of call offs. After I got off me and my family went to the fair. it was a beautiful day out with the sun out and it was warm. I put SPF50 on all over except my face :(. I guess I should have thought about that. I was already kind of tired from work then I walked around all day and got sun burnt. I know it was completely my falt but sometimes I just want to be careless and not have to think about lupus. Allot of people really take for granted how easy there every day life is. If they get burnt they just peel and that's all but today I've felt sick and my whole body hurts and I still had to get all my work done. After I finally got off the clock the midnight guy decided to flip out on me for slacking off. I've explained things to him before but some people are to uneducated to understand and to stubborn to learn .


-Matthew Sapp-