A couple nights ago I was taking a nap on the couch because I was completely exhausted and was already getting warm. When I woke up I was completely soaked and my nose started bleeding. I took my faïence home and came back and took a shower and went to bed and slept all night long. I was still worn out when I woke up the next morning but I had stuff do do. I never really have time to just rest all day. Normally I end up just going and going till I get to sick and have to stop.
My assistant at the church that helps me with the sound system asked me Sunday if we could work on the system today and I had to say no because I just haven't felt well enough to handle it. My grand father that I live with asked me If we were suppose to go out and work on it and I said no because it isnt a good week for it. He said next week isn't going to be any better because Amber will be here for the summer as if that was the reason why I didn't go this time. My family sees how sick I get why cant they get this in there heads. It really isnt that hard to understand. Some times I just think they are oblivious to what goes on.
Matt, Best of luck with the MTX. Looking back I know only God got me through the treatment, working full time, and being a full time student.
ReplyDeleteIn regards to family, I honestly do not think they are oblivious, I just think they have just as difficult time adjusting and will always see you in your pre-lupus self.