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As we know Monday is a holiday so all labs and what not are closed. Because of that I have blood work on Tuesday instead.this being the same blood test that i haven't gotten results from the last time and that was 2 weeks ago. If I don't have them by thursday I'm calling Cleavland clinic and freaking out on them. Really don't like being poked but if I have to be I want answers asap and I know they can have the. Because they do it all the time.

Also on Tuesday I have a ptinr for the 3rd week in a row because my blood will not thin out even after raising my dose 2 times in 2 weeks.come on body get with the program. The more you act up the more you get poked and the more irritated I get. We all know that's not good in any way.

But on a lighter note my little cuz graduates today and I'm really happy for her. She will do grate things in here life. So much potential. Ok before I right and more sentence fragments I need to go to bed and get some sleep. Going on 18 hours of being up. Not happy at all. Sweet dreams and many spoons

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2.4 and still not thin enough

For two weeks straight I've been getting a ptinr done to see I'd my blood is thin enough. I had it the first week and registered at a 2.4 which would be good for any one else but not for me because of my out of control clotting factor. I got a call from my Doctors office later that day telling me to raise my dose more and they would test me in a week. I went in yesterday and had it done and I'm still at a 2.4 so they told me to raise the dose again and we will check in a week so hopefully this works because I'm tired of taking so much rat poison.
I also had a blood test last week to check the effect on my liver the mtx is having and I still haven't heard results from that and thats rare for Cleavland clinic. I need to know because I have an other blood test this coming Monday. This really gets old fast. Could be worse though. At least when they take blood out it thins me out a bit. But I could go with out seeing my ex gfs grand mother at the lab. That's just weird but owell at least that one likes me. That's all for now.


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People will never understand

Not Easter Sunday but the Sunday before that I started on something called Methotrexate also known as MTX. I was completely fine with the idea of taking it until I decided to read about what it was. It scared me half to death not just because of what it could do to me but what it could do to my future children. I would absolutely hate my self if my children had problems because of a substance that I was putting in to my body. I intend to talk to my rheumy in Aug. when I see her next. For now worrying about that stuff isn't going to do any good to any one. So far I have noticed the extreme fatigue and fever and nauseous feeling but so far it hasn't gotten to bad to where I cant handle it.

A couple nights ago I was taking a nap on the couch because I was completely exhausted and was already getting warm. When I woke up I was completely soaked and my nose started bleeding. I took my faïence home and came back and took a shower and went to bed and slept all night long. I was still worn out when I woke up the next morning but I had stuff do do. I never really have time to just rest all day. Normally I end up just going and going till I get to sick and have to stop.

My assistant at the church that helps me with the sound system asked me Sunday if we could work on the system today and I had to say no because I just haven't felt well enough to handle it. My grand father that I live with asked me If we were suppose to go out and work on it and I said no because it isnt a good week for it. He said next week isn't going to be any better because Amber will be here for the summer as if that was the reason why I didn't go this time. My family sees how sick I get why cant they get this in there heads. It really isnt that hard to understand. Some times I just think they are oblivious to what goes on.

Irritated

Today I got a call from my Doctors office saying that he wouldn't be coming in today. If this was a normal appointment I wouldn't mind but I was going to get results from blood test and xrays because I am flaring. I am currently out of Preds and an will be out of my anti inflammatory some time next week. I don't see how someone that takes care of peoples medical health can just not come in with out reason.

I really don't want to deal with people so I am going to try to get in to my Rheumy some time soon. It might be as soon as Monday. I could have gotten in on thursday but I work that day and cant afford to take the day off. Right now im so shaken that I cant think straight so im done. Grr

Worse flare ive had so far

So right now I'm in the middle of the worse flare that I've had so far. I probably should be resting in bed because of being so weak and in pain but my job has gotten me use to high levels of pain. For the past few days I've been getting worse and worse to the point that I'm barley able to walk with out falling over. Saturday night my hands were very swollen and I could hardly move them to even pick any thing up.

Called the doctor today to try to get an appointment because how how sick I was getting and they said that the Doctor wasn't coming in to his office today. That seems to happen allot with him. He just calls in and says hes not coming then the staff has to call around and cancel all of his appointments for that day and re-schedule every one. So I got scheduled in for tomorrow when I had my PTINR. I figured i would be waiting for 3 to 4 hours because I was being squeezed in. About an hour later they called back and said if I could get up there asap the doctor would be coming in . so I got ready and drove up and only waited for 20 min. I got some reading done but not very much.

I told him what was going on and he said he would put me on Prednisone and Naproxen for a week and I needed blood work and xrays to see what was going on. So he wrote all that up and then we just hung out for a while and talked technology. Am I the only one that just chills with the doctor and his staff talking about tech news? I just find it odd but owell I like to talk. From there we moved on to talking about fish and other stuff. I finally left there and went for my blood test and xrays then to the pharmacy to get my new meds. completely exhausting but now I can rest and enjoy my last day off . I hope to be able to go in to work on Wednesday.

YouTube - Deep Vein Thrombosis Documentary

YouTube - Deep Vein Thrombosis Documentary I thought this might be helpfull to some of you. Ive been haveing more issues with my legs lately and was doing some research. If you dont know what DVT is this video will explain it.

blood pocket

A couple days ago I just covered would appears to be a pocket of blood on inside upper part of my left leg. I figured it would eventually just sore back in my body and go away. Two days later this pocket burst open and poured out a lot of very dark colored blood. I'm not sure what this means yet but I don't plan on going to any Dr. for it unless things seem to get worse. if this had happened before I got sick I probably would've freaked out but after everything I've been through nothing really surprises me anymore. For the most part I even have trouble finding things that are worth blogging about. Has anything like this happen to you before? If so leave a comment and/or tweet me on twitter @msapp2 . I would prefer you at least leave a comment on this blog because by doing so this would add helpful information that others may find useful if they are having issues as well. I guess that's all for now I think this is the fourth or fifth post that I've blogged since around one o'clock this morning between both of my blogs. Leave me something if you have anything. God bless and many spoons